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Mariam's AFO story

Mariam (left) with her sister, wearing her new AFOs from LOC

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Mariam's AFO story

BY Daisy

15 September 2022

Bespoke AFOs have helped with Mariam's cerebral palsy

  Mariam was born 3 months prematurely with cerebral palsy. As a child, she was able to stand on her own but after several operations in Bolivia, her country of birth, and Mexico, where she had the SDR procedure, Mariam lost the ability to stand by herself for any length of time. She had lost confidence as she was losing her balance all the time and needed to look for support when standing alone. This year Mariam was visiting her Aunty Coral in Basingstoke for the first time and Coral had decided to see if she could find a way to help her niece regain her balance and improve her posture and walking. Coral began researching on the internet; the breakthrough came when she also talked to the head teacher at a special needs school who highly recommended the London Orthotic Consultancy because she had referred pupils with cerebral palsy to LOC previously and had been very impressed with the physical improvements that she had seen in those children. This endorsement backed up what Coral had found in her internet research and Mariam was booked in for an assessment at LOC. Mariam was seen by Jack Choong, one of LOC’s senior orthotists, on 4 May. At her assessment Jack found that Mariam was affected in both legs and could not stand for more than ten seconds before losing balance and feeling unsafe; she was continuously reaching out for a surface to hold onto. Mariam was assessed in LOC’s Gait Laboratory which provides our orthotists with objective data relating to each patient’s gait and is used to optimise the bespoke orthotics we prescribe, manufacture and fine-tune for treating lower limb conditions. Jack prescribed rigid AFOs but with a flexible footplate and 10-degree pitched shoes. LOC spends a lot of time working out the best footwear for CP patients as getting the footwear wrong can negate any benefit the orthosis may be providing.

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FAQs:

What does AFO stand for?

An AFO is an Ankle Foot Orthosis which as the name would suggest encompasses the ankle and foot. The objective is to control the position and movement of the ankle. AFOs are used to support weak limbs; they can also be used to immobilise the ankle and lower leg to correct foot drop. When set up correctly they can also have a great influence on the knee and hip joints. They are the most commonly used Orthoses.

How long do you wear an AFO?

The length of time that one needs to wear an AFO very much depends on the condition being treated. If it is a long-term condition like cerebral palsy or post-polio syndrome it is likely to be years as the condition cannot be cured. Your orthotist will advise you.

How should an AFO fit?

A patient’s comfort in their AFO is vital for compliance with the prescribed wearing regime. So there are a number of steps the orthotist should take to ensure a comfortable fit: the patient’s heel should fit fully into the heel cup without excess space, the contours of the plantar surface of the AFO should match the patient’s foot, for children there needs to be up to half an inch growth room in the toe shelf length. At LOC we use our Gait Laboratories at our Kingston and Manchester clinics to fine-tune our bespoke orthotics.

Can you get a flexible AFO?

The most flexible type of AFO is a Dynamic Ankle Foot Orthosis (DAFO).  It is thin and provides flexible support to the foot and ankle.

How much do AFOs cost?

The cost of an AFO is dependent on the type of AFO that has been prescribed and the material that it has been made with. Carbon fibre will be more expensive than metal or plastic for example. LOC’s bespoke AFOs cost can be found on our Orthotic Prices page.

Do AFOs fit under trousers?

The simple answer is: yes they can. However one has to be sensible and look for wide-fitting trousers/jeans preferably of light and thin material. Before (left) After treatment (right) Mariam has now had her final review with Jack prior to returning home. Coral says: “The change in Mariam is incredible, immediately her AFOs were fitted she was able to stand without assistance for 5 minutes or more and now she feels so much more confident. She looks in the mirror and smiles, she feels taller (because she is standing straighter). She says her feet are far more flexible which helps with her walking and of course, she is far more active than she has ever been. Now the only problem is she will miss Jack’s help and guidance. From being monosyllabic at her first assessment now it is questions, questions at each review!!”  Jack has provided Mariam with detailed guidance about her AFOs, and hints and tips for improving her gait herself. Reviews will be conducted remotely until Mariam returns to visit Coral next year. If your child has cerebral palsy like Mariam or another neurological condition that affects their lower limbs, properly designed bespoke orthotics can make all the difference. Please take a look at our AFOs and our bespoke orthotics to get a broader understanding of what LOC offers, or contact LOC directly.

Related Pages:

Cerebral Palsy Paediatric Treatment SDR Neuro Swing AFO OSKAR Ankle Foot Orthosis AFO