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Tornado Tom's Story

#plagiocephaly

Tornado Tom's Story

BY Jon W

20 July 2016 Tom was 4 ½ months old when he first came to The London Orthotic Consultancy. His parents were concerned, having noticed his flat head shape following a diagnosis of torticollis. Tom’s neck movement resolved with stretches and repositioning - however mum and dad had not seen any improvement in his head shape following three months of repositioning. Tom was assessed and diagnosed with a severe plagiocephaly affecting the left side of his head. His parents were particularly concerned about the asymmetry to his forehead and cheek. Repositioning at the critical age had proved unsuccessful and therefore his parents wanted to move onto the next stage, London Orthotic Consultancy’s LOCband treatment. Tom’s helmet was fitted two weeks later and within ten weeks his asymmetry had reduced by 50%. After four months, his asymmetry was minimal. However, he continued to wear the helmet at night since he was still favouring his left side for sleeping and his parents were concerned about how flexible his head was.

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OSKAR launch When Tom was discharged from treatment two months later his head shape was excellent and his parents were thrilled with the results. His mum says that “we would always highly recommend the London Orthotic Consultancy”. Sally Hews, Senior Orthotist

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  Are you concerned about your baby’s head shape? You can use our online flathead diagnosis form for a fast, free and confidential clinical opinion from a fully qualified orthotist.

FAQs:

How frequently do we need to attend reviews?

This is very much dependent on how fast your baby is growing. The faster the growth, the more frequently your baby will be seen so that the helmet can be adjusted. In general, reviews will happen at two to four-week intervals.

What does the price of the treatment cover?

The price of treatment covers: all your baby’s required appointments from start to the end of treatment, no matter how many are required to achieve the improvement in head shape that you are happy with; the cost of manufacturing the LOCband and supply of appropriate cleaning fluid for the band; all reports to your GP/paediatrician/ cranial osteopath/physiotherapist, including a final scan report with objective measurements of change achieve; full telephone support from your clinician during treatment, and, if necessary, extra review appointments at short notice.

Does cranial remoulding therapy really work?

Yes - All babies that have completed their course of treatment with us have achieved a measurable improvement in head shape. However, you don’t have to take our word for it.
Recent independent research conducted by a University Hospital in Germany has endorsed the treatment for babies with moderate or severe plagiocephaly. A larger, retrospective study has just been published that found complete correction was achieved in 94.4% of babies treated with helmet therapy. The results were conclusive: repositioning achieved acceptable correction in 77.1% of cases, but 15.8% were moved onto helmet therapy because re-positioning was not working. Meanwhile, 94.4% of the infants who started in the helmet-treated group achieved full correction, as did 96.1% of those who were transferred from the repositioning group into the helmet-treated group. Further information can be found on our Plagiocephaly Research page.

What should I do if my baby is ill or has a temperature?

If your baby has a temperature or a fever due to illness you must remove the band. The band can be put back on once the temperature has returned to normal.

What is the best age to start treatment?

The optimum age for treatment is between four and seven months. This is because the skull is most malleable at this age and improvements to head shape tend to take less time and are more dramatic. That is not to say that helmet therapy should be ruled out if the baby is older than seven months. Routinely, babies up to the age of 16 months can be treated very successfully. The cut off age is around 18 months when the fontanelles (soft spots on the head) are no longer malleable. As babies grow and develop at different rates, it is always worth checking if you are not sure. There have been cases where a baby’s fontanelles have not fused yet by the age of 18 months, who have achieved successful, but less-marked results with cranial remoulding therapy.

What is torticollis?

Torticollis is a condition in which a tight or shortened muscle in one side of the neck causes the head to tilt or turn to one side, resulting in the infant resting its head in the same position. In 2013, we analysed the data from all first appointments in our Kingston clinic and found that 20% of the babies examined had some kind of neck condition that was causing head immobility.

Why should I choose LOC in preference of another clinic?

The clinics and clinicians that provide this treatment in the UK will have received similar training and experience. However, we are the only clinic that manufactures its own helmet and our clinicians are closely involved with the process for each individual helmet that we produce. In addition, we do not restrict review appointments to a set number, we are extremely flexible and respond to individual parents' needs so that the best outcome can be achieved for each baby.

How does helmet therapy work?

The LOCband is non-invasive and works by applying gentle, constant pressure over the areas of the baby’s skull that are most prominent while allowing unrestricted growth over the flattened areas. The band consists of a soft foam layer inside a thermoplastic shell. As the baby grows, the band will be adjusted frequently to gently guide the skull into a more symmetrical shape.    

Related Pages:

Brachycephaly What is Positional Plagiocephaly? Plagiocephaly Treatment The LOCband